Thursday, October 9, 2014

Dejavu

I feel like my life has been replaying itself lately. Since July I have been doing things that I didn't think that I would ever do again. You know, same story just a different day. For me though it was same story, different child. In July I took James in for a well child check up. I wasn't expecting anything to be different. But after the doctor looked at his growth chart.....I knew what was wrong. I knew it and I couldn't deny it. Since we have experience with this, the doctor looked at me and asked when we went to see Dr. Z again for Bethany. I told him and he told me that I needed to make another appointment for the same time for James. It wasn't the news that I wanted to hear, but if I have to do something twice, I might as well do something that I already know how to do.
We have been down this road called Growth Hormone Deficiency before, and now we are traveling it again with a different child. James has officially been given this badge to wear. He has done most of the tests that Bethany had to do, other than a bone age test. Dr. Z feels that he is too young to have that one done yet.....but I am sure we will have to do it soon. He has had so much blood work done in the last few months that when we drive by the hospital, that is what he talks about.
We are currently awaiting approval from the insurance for his medication, but that process is quickly coming. I received a letter yesterday saying that he has been approved. Today I got a phone call from the drug company saying that they will send out his "pen" for delivery tomorrow. I am now awaiting a call from the pharmacy that delivers Bethany's medication to verify everything and get James' first shipment coming.
I am not as emotional as I was when we were starting this process with Bethany, but I am sad. I know that he will be just fine. He has been exposed to this with Bethany and I think that he knows what will happen....he just wants to start it now! I was looking back through my posts on Bethany and her GHD and saw a picture......that picture really brought home that yes we are on the right track for James. Why? Well, when I looked at that picture of a much younger Bethany, and I looked closer.....I saw James. I saw him just with long hair. They could be twins!!!! (Just lots of years apart).
So I am traveling this road again, just this time with James. I know all the stops along this road.....well, at least I think I do. We may have a few bumps along the way that we don't know, but for now things are familiar. And for now, we wait for the medication to come so we can truly start down the road with James.

Sunday, June 8, 2014

Time for changes

I seem to be a broken record lately. I tell myself that I am not going to let time get away from me and I am going to post often.....and I don't.
Wyatt got to Florida! We were able to send him and he survived. He survived his first plane ride ever! He had an amazing experience that helped me grow as a mother....I know that seems weird. But I always have a hard time letting the kids go on these type of trips because I always wonder. I wonder did I teach them enough to be able to make it. I guess it is a short trip for them into the world without mom.....and he made it. AND I made it without him and made it through worrying at how he would do. He is already talking about next year (and I think by what I was able to watch of their live feed from the opening ceremonies for Science Olympiad, that it will be in Nebraska! Much closer)
Most of my time lately has been getting a taste of what Gabe does day in and day out. We only were doing this in the evenings, but I know that he line of work is NOT for the faint of heart and more than that....... I couldn't do it because I don't like heights. I am not afraid of them in the sense that I can't go up, but I am a nervous wreck when I am up there and heave a huge sigh when my feet finally are able to come back to solid ground. What am I talking about? Well, we just finished re-siding our house. This isn't for the faint at heart, we did all the work ourselves, with help from our neighbor at just the right times too! Our house is two stories which means that some of the work needed to be done with scaffolding. Thankfully our house has roof lines that allowed some of the work for the second story to be done on the roof, but still not my cup of tea! I am glad to say that we are now officially done!!! All of the painting is over, the siding is up and the caulking has been done. ALL the finishing touches are done! This has been on our plates since March!
We have also been doing graduation stuff. As much as I hated thinking about it and knowing that it was happening....it is done. Amanda is now a high school graduate! She graduated at the end of May. We are proud of her and hope that she does well. I won't have to let go too soon as she is going to live here and go to our local community college. I will have to post pictures at another time.....it seems that my computer is not communicating with my camera.

Friday, April 18, 2014

The best of the last 6

Too much has happened in the last 6 months that I don't think I am even going to try and post about all that. I will high light some of the more important things though.
Henry had surgery at the ripe old age of 15 months. What? Why? you might ask. Well the short story is that he had clogged tear ducts and they opened them up. That doesn't tell the whole story though. As a mom I have had my fair share of trials with my kids. This clogged tear duct thing I guess I didn't learn the first 7 times it happened. All of my kids have had this, but only 2 have had to have surgery to unclog them. So this topic I feel like I am a bit of an expert in. But with this child, surgery isn't something that I would care to repeat anytime soon. Henry did fine with everything BUT coming out of the anesthesia. He was crabby and didn't want anyone but.......his dad. I couldn't hold him, I couldn't cuddle with him, nothing. Talk about breaking a mom's heart. But we survived and the difference it has made in his eyes is awesome!
Bethany continues to grow and do wonderful things on her medicine. If only I could say the same thing about her insurance and helping us get the medicines. We have had to switch her brand of medication AGAIN because our insurance plan changed somewhat. One plan prefers one brand and our current plan prefers another. So that set her back as we had to wait for authorization and all the paperwork to be filled out. Then after seeing Dr. Z. in February, he upped her dosage. Well that set us back again, because now we had to fill out NEW paperwork with the correct dose on it. UGGG!! Insurance paperwork is a pain in the rear!!! But now I think we are back on track.
Wyatt competed in a Science Olympiad for school at the end of March. He and his partner competed in two events: simple machines and a boomilever. They placed 1st in each event!! Well, I didn't realize this but this was a state competition! So by doing so well, they qualified to go to Orlando, Florida next month (May)! So now the race is on for us to raise enough money for him to go. (If you want to help out contact me).
So, those are the best of the best from the last six months. We have had our moments of stress and our moments of.....well everything under the sun. I am going to try and do much better at keeping this updated, as this kind of serves as a journal too. So until later.....